The Kissing Bug: A True Story of a Family, an Insect, and a Nation's Neglect of a Deadly Disease

Winner of the PEN/Jean Stein Book AwardNational Book Foundation Science + Literature SelectionFinalist for New American Voices Award and Lammy Award for Bisexual NonfictionA TIME, NPR, Chicago Public Library, Science for the People, WYNC, WBUR Radio Boston, and The Stacks Podcast Best Book of the YearLonglisted for the PEN Open Book Award As heard on Fresh AirGrowing up in a New Jersey factory town in the 1980s, Daisy Hernández believed that her aunt had become deathly ill from eating an apple. No one in her family, in either the United States or Colombia, spoke of infectious diseases. Even into her thirties, she only knew that her aunt had died of Chagas, a rare and devastating illness that affects the heart and digestive system. But as Hernández dug deeper, she discovered that Chagas—or the kissing bug disease—is more prevalent in the United States than the Zika virus. After her aunt’s death, Hernández began searching for answers. Crisscrossing the country, she interviewed patients, doctors, epidemiologists, and even veterinarians with the Department of Defense. She learned that in the United States more than three hundred thousand people in the Latinx community have Chagas, and that outside of Latin America, this is the only country with the native insects—the “kissing bugs”—that carry the Chagas parasite.Through unsparing, gripping, and humane portraits, Hernández chronicles a story vast in scope and urgent in its implications, exposing how poverty, racism, and public policies have conspired to keep this disease hidden. A riveting and nuanced investigation into racial politics and for-profit healthcare in the United States, The Kissing Bug reveals the intimate history of a marginalized disease and connects us to the lives at the center of it all. Read more